DISEASE SCANNER

Global Incurable Diseases Tracker

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Genetic Disorder

Abetalipoproteinemia

HIGH SEVERITY

A rare autosomal recessive disorder causing inability to synthesize apolipoprotein B, resulting in fat malabsorption, fat-soluble vitamin deficiency, and neurological complications. Presents with acanthocytosis and severe deficiency of fat-soluble vitamins.

Global Affected

10.0K

Countries

15

Symptoms

Fat malabsorption
Steatorrhea
Failure to thrive
Acanthocytosis
Retinitis pigmentosa
Neurological dysfunction
Vitamin E deficiency
Vitamin A, D, K deficiency

Treatment Options

High-dose vitamin E (100-200 IU/kg/day)
Vitamin A, D, K supplementation
Low-fat diet with MCT oil
Essential fatty acid supplementation
Neurologic monitoring

Risk Factors

1Autosomal recessive inheritance
2MTTP gene mutations
3Consanguineous parents

Diagnostic Methods

  • 1Lipid profile showing absent LDL
  • 2ApoB measurement
  • 3Molecular genetic testing
  • 4Peripheral smear for acanthocytes
  • 5Ophthalmologic examination
  • 6Neurologic assessment

Prognosis

Without treatment, progressive neurological deterioration and vision loss occur by age 30. With early high-dose vitamin E therapy (100-200 IU/kg/day) and fat-soluble vitamin supplementation started in infancy, neurological function can be preserved and many patients maintain independent living into adulthood. Retinitis pigmentosa may still progress despite treatment. Regular monitoring every 6-12 months is essential.

Prevention

  • Genetic counseling
  • Carrier testing for at-risk populations
  • Prenatal diagnosis available

Research Status

High-dose fat-soluble vitamin supplementation, especially vitamin E. Low-fat diet with essential fatty acids. Monitoring for neurological and ophthalmologic complications. Early treatment prevents progression.

Sources

  • https://www.ncbi.nlm.nih.gov/books/NBK1116
  • https://medlineplus.gov/genetics
  • https://rarediseases.org

Medical Disclaimer

This information is for educational purposes only. Always consult healthcare professionals for medical advice, diagnosis, and treatment.